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Forum CopilulMeu • View topic - neurofibromatoza va spune ceva

neurofibromatoza va spune ceva

Prima copilarie... Temeri si frici frecvente... Probleme cu somnul, alimentatia, intarcatul... Solutii.

neurofibromatoza va spune ceva

Postby ovejdancarmen » Tue Jun 20, 2006 11:52 pm

vreau sa vorbesc cu cat mai multe mamici care sunt in aceiasi situatie ca mine .
ovejdancarmen
 
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neurofibromatoza

Postby janad7 » Wed Jun 21, 2006 8:38 am

Daca imi dai mai multe detalii, poate ca avem aceeiasi problema.Eu am fost diagnosticata cu fibromastoza chistica.
thana
janad7
Asistent
Asistent
 
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Postby veronicabalasa » Wed Jun 21, 2006 9:24 pm

[bebe] are neurofibromatoza? E intr-adevar o problema dar nu inseamna ca este o drama. Neurofibromatoza este o boala genetica, probabil ca stii asta. Cu un pic de atentie in plus lucrurile pot sta sub control si oricum sunt forme si forme de neurofibromatoza, cele mai multe nu sunt grave. Ce ai vrea sa stii in mod special?
veronicabalasa
 
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neurofibromatoza va spune ceva

Postby ovejdancarmen » Mon Jul 03, 2006 4:23 pm

poti sa-mi dai mai multe informati despre aceasta boala genetica
ovejdancarmen
 
Posts: 11
Joined: Tue Jun 20, 2006 11:33 pm

neurofibromatoza va spune ceva

Postby ovejdancarmen » Mon Jul 03, 2006 4:25 pm

catre vioricabalasa. ce inseamna mai multa atentie .
ovejdancarmen
 
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Postby veronicabalasa » Mon Jul 03, 2006 9:46 pm

adica se face o harta a leziunilor vizibile si se urmareste evolutia lor
veronicabalasa
 
Posts: 87
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neurofibromatoza va spune ceva

Postby ovejdancarmen » Tue Jul 04, 2006 9:31 am

veronica baietelul meu are acum 1 an si 2 luni momentan are pe corp peste 10 pete (cafea cu lapte) si una pe spate ,cam jumatate din spate. Pe langa aceste pete ia mai aparut si o galmuta in spatele urechi la caput.Cam asta are Alex.Acum trage tu concluzia .Multumesc ca comunici cu mine .Carmen
ovejdancarmen
 
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Postby veronicabalasa » Wed Jul 05, 2006 7:17 pm

Iti inteleg ingrijorarea si incerc sa-mi dau seama prin ce treci. La ce clinica ai fost cu [bebe] pentru diagnostic si dispensarizare si ce ti-au spus medicii de acolo?
veronicabalasa
 
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