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Forum CopilulMeu • View topic - AJUTOR

AJUTOR

Colici, reactii la vaccin, probleme de sanatate ale bebelusului. Povesteste-ne experienta ta!

AJUTOR

Postby VALERYA » Sun Oct 14, 2007 6:25 pm

VA ROG DIN SUFLET AM UN BAIAT DE 16 ANI BOLNAV DE ARTRITA CRONICA JUVENILA CU TENDINTA SPONDILITICA,VA ROG MULT PUTETI SA MA AJUTATI SA O STOPEZ? VA ROG DIN SUFLET
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Postby loredanalisca » Fri Oct 19, 2007 11:30 am

Cum putem sa te ajutam?
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Postby VALERYA » Fri Oct 19, 2007 11:47 am

cu un medic bun reumatolog,cu un tratament,medicii imi spun ca nu se vindeca dar se poate stopa,pina acum nu am rezultate ,baiatul meu are dureri mari ,amorteste,nu pot sal ajut ,6ani a fost cu artrita reumatoida juvenila ,diagnostic pus la institutul fundeni ,acum am fost in ITALIA la un reumatolog aici i sa pus diagnosticu ,de 6 ani fac experiente pe el ,si el este mai rau ,nu mai stiu ce sa fac poate gasesc pina la urma ceva...multumesc
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Postby loredanalisca » Fri Oct 19, 2007 12:41 pm

Imi pare nespus de rau pt voi, cred ca aveti o durere in suflet.... Eu nu cunosc doctori in acest domeniu, dar vreau sa te intrb: ai incercat tratamente naturiste?
Sper ca nu aberez.....!?
Incearca www.favisan.ro D-na Virgina Faur poate te sfatuieste. Mai tinema la curent si sanatate.
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Postby VALERYA » Fri Oct 19, 2007 12:50 pm

multumesc mult numai sunt singura in sfirsit cineva mia raspuns imi este foarte greu sunt putini oameni care te inteleg ,sunt foarte multi copii care au nevoie de ajutor ii inteleg pe acei parinti si durerea mea este mare dar speram in continuare poate o sa reusim ,multumesc multa sanatate
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Postby loredanalisca » Fri Oct 19, 2007 1:38 pm

Ca sa atragi atentia asupra problemei cu care te confrunti te sfatuiesc sa-ti faci mai multa reclama: introdu poze, scrie mesaj si in alte domenii, pe alte site-uri, pe acest site poti vorbi cu un medic. Vad ca nu prea se inghesuie lumea sa dea un ajutor..... multi fug si de problemele lor, dar mai de ale altora..... pupici [floare]
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Postby gacris » Fri Oct 19, 2007 2:41 pm

Inteleg prin ce treci si-mi dau seama ce durere mare te apasa,dar,din pacate nici eu nu te pot ajuta,pt ca nu sunt in tema cu aceasta boala.
Singurul lucru pe care-l pot face pt tine este sa te incurajej,sa-ti spun ca nu trebuie sa te dai batuta,lupta pt copilul tau,si nu-ti pierde speranta si incerderea in Dumnezeu.
Vei vedea ca intr-o zi,soarele va rasari si pe strada voastra.
Iar aici,intotdeauna vei gasi pe cineva dispus sa-ti dea un sfat,o vorba buna.
Nu esti singura.
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Postby frapona » Mon Oct 22, 2007 11:08 am

Imi pare foarte rau ca trebuie sa treci prin toate incercarile acestea, dar sa nu renunti niciodata sa lupti. Am o prietena care sufera de poliartrita reumatoida (nu stiu daca are legatura cu boala baiatului tau) de mult timp si care a facut tratament gresit. A suferit foarte mult . A cautat pe internet tratamente si a gasit un medicament foarte scump dar care a dat rezultate. A reusit sa obtina medicamentul prin comisia de expertiza. Medicamentul se numeste ENBREL (etanercept). Acum ea se simte foarte bine. Interesati-va la medicul vostru daca e de folos. Mult succes.
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Postby VALERYA » Mon Oct 22, 2007 2:28 pm

multumesc oricum ptr.raspuns,din pacate nul ajuta lam descoperit si eu pe internet ma bucuram ,dar atunci fiul meu avea artrita reumatoida diagnostic pus la spitalul fundeni ,6ani am mers cu acest diagnostic si de 2 saptamini am venit din italia cu alt diagnostic care ii afecteaza coloana ,are dureri mari si la celelalte articulatii ,medicul nea zis ca incearca sa o stopeze ,trebuie stopata ,deci am nevoie de un medicament ptr.spondilita anchilozanta ,va rog daca mai auziti un zvon cit de mic eu sint aici astept ,poate o minune va multumesc
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