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Forum CopilulMeu • View topic - sindromul down
Page 1 of 2

PostPosted: Mon Jan 24, 2005 9:32 pm
by bodo
ce puteti sa-mi spune-ti despre cresterea acestor copii

PostPosted: Tue Jan 25, 2005 11:09 am
by doinaden
Eu nu stiu prea multe dar daca vrei iti dau nr. de tel. al unui medic de la noi, recunoscut pt.nasterea si studiul copiilor cu acest sindrom.Cunosc numai o doamna pe care a avut un asemenea copil si nu a supravietuit. Dar acest medic a tratat-o si acum are un copil mare , cred ca are mai mult de 4, 5 ani, si e perfect sanatos.

PostPosted: Tue Jan 25, 2005 10:52 pm
by Vali
Spune-mi ce te intereseaza?
Cresterea lor este mai lenta si progresele facute vin in timp - de exemplu fiul meu a mers la 3ani si jumatate primii pasi.
In functie de ce alte boli mai are copilul evolutia poate fi mai lenta sau aproape de normal.

PostPosted: Wed Jan 26, 2005 8:37 am
by bodo
imediat dupa nastere ati facut vreun test pentru a se determina cat de afectat este copilul?

PostPosted: Wed Jan 26, 2005 8:39 am
by bodo
chiar va rog,eu cred ca totusi daca sunt indrumati parintii copilul poate sa se dezvolte cat de cat normal.

PostPosted: Wed Jan 26, 2005 8:44 am
by bodo
doctorii spun ca este sanatos,dar au spus ca ar trebui lasat in maternitate,de ce dau asemenea sfaturi,am citit pe net ca se pot adapta ,chiar daca adaptarea se face un pic mai greu.

PostPosted: Wed Jan 26, 2005 8:50 am
by Vali
Dupa nastere se poate face "Cariotipul" - este o analiza din singe al carei rezultat -la noi- este pozitiv sau negativ.
Cit este de afectat copilul se va vedea in timpul evolutiei sale.
Ce virsta are copilul tau?
Te sfatuiesc sa verificati intai daca cumva are probleme cu inima. Mie mi-au spus de SD la 3 zile dupa nastere dar despre problema de la inima am aflat abia cind avea 6 luni, dupa ce a facut o pneumonie foarte grava de era sa-l pierdem.
Intra si pe site-ul www.sindromdown.ro.
Multa bafta,
Vali

PostPosted: Wed Jan 26, 2005 6:15 pm
by Feliciune
Sunt centre speciale pentru recuperare, cu specialisti. Trebuie sa treci si pe acolo!

PostPosted: Wed Jan 26, 2005 7:17 pm
by bodo
nu este copilul meu este al prietenilor mei si am fost fff afectat cand am aflat

PostPosted: Wed Jan 26, 2005 7:18 pm
by bodo
si as vrea sa ii ajut cat pot eu