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Forum CopilulMeu • View topic - neurofibromatoza va spune ceva
Page 1 of 1

neurofibromatoza va spune ceva

PostPosted: Tue Jun 20, 2006 11:52 pm
by ovejdancarmen
vreau sa vorbesc cu cat mai multe mamici care sunt in aceiasi situatie ca mine .

neurofibromatoza

PostPosted: Wed Jun 21, 2006 8:38 am
by janad7
Daca imi dai mai multe detalii, poate ca avem aceeiasi problema.Eu am fost diagnosticata cu fibromastoza chistica.

PostPosted: Wed Jun 21, 2006 9:24 pm
by veronicabalasa
[bebe] are neurofibromatoza? E intr-adevar o problema dar nu inseamna ca este o drama. Neurofibromatoza este o boala genetica, probabil ca stii asta. Cu un pic de atentie in plus lucrurile pot sta sub control si oricum sunt forme si forme de neurofibromatoza, cele mai multe nu sunt grave. Ce ai vrea sa stii in mod special?

neurofibromatoza va spune ceva

PostPosted: Mon Jul 03, 2006 4:23 pm
by ovejdancarmen
poti sa-mi dai mai multe informati despre aceasta boala genetica

neurofibromatoza va spune ceva

PostPosted: Mon Jul 03, 2006 4:25 pm
by ovejdancarmen
catre vioricabalasa. ce inseamna mai multa atentie .

PostPosted: Mon Jul 03, 2006 9:46 pm
by veronicabalasa
adica se face o harta a leziunilor vizibile si se urmareste evolutia lor

neurofibromatoza va spune ceva

PostPosted: Tue Jul 04, 2006 9:31 am
by ovejdancarmen
veronica baietelul meu are acum 1 an si 2 luni momentan are pe corp peste 10 pete (cafea cu lapte) si una pe spate ,cam jumatate din spate. Pe langa aceste pete ia mai aparut si o galmuta in spatele urechi la caput.Cam asta are Alex.Acum trage tu concluzia .Multumesc ca comunici cu mine .Carmen

PostPosted: Wed Jul 05, 2006 7:17 pm
by veronicabalasa
Iti inteleg ingrijorarea si incerc sa-mi dau seama prin ce treci. La ce clinica ai fost cu [bebe] pentru diagnostic si dispensarizare si ce ti-au spus medicii de acolo?