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Forum CopilulMeu • View topic - epilepsia la copii
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epilepsia la copii

PostPosted: Wed Apr 19, 2006 10:44 am
by Ioanaluminita
Buna mamicilor.Eu sunt noua pe forum,dar am citit atatea lucruri interesante incat as vrea parerea voastra despre fetita mea,Mara.Are 7 luni si dr.mi-au suspectat-o de epilepsie in urma unor tremuraturi succesive[s-a intamplat in 2 randuri] care spun ei ar fi fost convulsii...
Eu nu cred nimic din toate astea[s-au nu vreau sa cred].Nu s-a intamplat la nici unul din bebeii vostrii sa aiba asemenea manifestari???

PostPosted: Wed Apr 19, 2006 2:34 pm
by ella-o
Am trecut si eu prin asa ceva.
Vezi la http://copilulmeu.ro/forum/viewtopic.php?t=3709

PostPosted: Wed Apr 19, 2006 2:35 pm
by ella-o
Daca mai ai intrebari,sunt aici.

PostPosted: Wed Apr 19, 2006 3:05 pm
by Ioanaluminita
Mie nu mi-au spus medicii daca e sau nu epilepsie,au zis sa mai asteptam si alte manifestari,dar oricum este suspecta...Si pe langa toate stea am aflat ca sunt cazuri[doua]in familie la sotul meu.Nici nu stiu ce sa mai cred...Pe la 5 luni a facut si o criza de cianoza generalizata care ar fi tot un simptom de epi.

PostPosted: Thu Apr 20, 2006 11:46 am
by Ioanaluminita
Ella-o mi-ai spus ca ai trecut si tu prin asa ceva ,poti sa-mi spui despre ce a fost vorba la voi? Cat are fetita ta?

PostPosted: Thu Apr 20, 2006 12:17 pm
by ali23

PostPosted: Thu Apr 20, 2006 12:19 pm
by ali23
Nu stiu daca te ajuta articolul de mai sus...insa as vrea sa-i urez sanatate multa bebelusului tau si sa speram ca nu e vorba de epilepsie!

PostPosted: Thu Apr 20, 2006 12:29 pm
by ananda
draga Ioanaluminita, poti sa ne descrii crizele de tremuraturi si criza de apnee cu cianoza pe care le-a facut? in ce context au aparut (era treaza, dormea, plangea, avea febra, etc), cat au durat, cum au fost exact tremuraturile (tot corpul sau doar o parte), a fost constienta in timpul crizei sau nu, a fost mai somnoroasa dupa aceea, si-a muscat limba... citeste ce ti-a trimis ali23, mai gasesti si alte articole despre epilepsie chiar si in limba romana, si incearca sa ne descrii cat mai exact cum a fost.

ai avut vreo problema in timpul sarcinii/nasterii?

ce investigatii i s-au facut pana acum?

scuze, nu mai pot sa scriu in momentul asta dar promit sa citesc raspunsul tau si, daca pot, sa incerc sa te ajut cu cate ceva.

sanatate multa!

PostPosted: Thu Apr 20, 2006 2:53 pm
by Ioanaluminita
Multumesc mult pt.informatii Ali23.Am citit mult privitor la epilepsie in ultimul timp,plus ca am stat de vb.cu medici neurologi care mi-au explicat ce inseamna si cam ce implica aceasta boala...
Orice informatie este bine venita,iti multumesc inca o data!!!

PostPosted: Thu Apr 20, 2006 3:21 pm
by Ioanaluminita
Draga Ananda,in primul rand vreau sa-ti spun ca nu am avut probleme in timpul sarcinii,am nascut normal la 40 de sapt.
In ceea ce priveste crizele{am sa le spun asa],prima data s-a invinetit.Toata!!!Era albastra ca pruna.M-am speriat si am ajuns la spital la Gomoiu.Acolo i-au facut eeg-uri ,treaza si in somn.Normale ambele.Am uitat sa-ti spun ca ,cianoza nu s-a asociat si cu alte simptome.Pur si simplu,treza fiind,dintr-o data s-a invinetit,in mai putin de un minut avea culoarea normala.Aceasta criza nu a fost insotita de apnee cum ai crezut tu[si mie mi se pare ciudat], avea o resp.normala.Se comporta normal.
Dupa o luna ,la 6 luni,au fost tremuraturile.Prima data in somn cateva sec.fara sa se trezesca.A doua oara la trezire,adica s-a tezit tremurand,toata ca varga,inclusiv capul.Nu stiu daca era constienta,parea somnoroasa,ca dupa somn,dar se uita intr-un punct fix.Iar am ajuns la spital,la Obregia de data asta.Alte EEG-uri,tot bune.
Cam asta a fost...medicii au spus sa mai asteptam,nu mi-au dat un diag.precis,intrucat si tratam.este destul de dur.
Daca mai vrei sa-mi scrii eu astept.